MAIN OBJECTIVES

·         To serve the common aim of an individual, Xantha Maree Marshall, whose life is affected by EB

·         To promote the provision of services which meet the needs of this individual.

SUBSIDIARY OBJECTIVES

·         To enhance the quality of life of Xantha Marshall

·         To promote and raise community awareness and understanding of Epidermolysis Bullosa.

·         To raise funds and invest them and incur necessary expenditure.

·         To develop and maintain a website for the purpose of keeping members and interested persons informed.

·         To facilitate the availability of reliable information concerning EB and its treatment.

·         To exchange information between support groups.

·         To stimulate research into the causes, diagnosis and treatment of EB and to promote public understanding of the importance of that research.

·         To voice and promote the news of members on issues of common concern.

·         To develop programmes of common interest.

·         To do all other things as will further the aims of the organisation.

·         To distribute any surplus funds no longer required by Xantha Marshall to DEBRA Australia.